Question.

Hypothetically speaking, if you went and knocked on your neighbor's door, and it had a large window with no curtain, and you could see in their house, and you saw the lady of the house and waved "Hi!" and smiled, and she left, and then her boyfriend came out from the bedroom holding a steak knife, then he answered the door perfectly friendly like (whilst still holding the steak knife), then he was very conciliatory about turning the music down (whilst still holding the steak knife), and you were all understanding and grateful (whilst wondering about the steak knife), but the entire time he kept holding a steak knife (and by holding, I don't mean, like, kinda fiddling with it or holding it like you're about to wash it, maybe, or you were just using it in your bedroom to, ummmm, open the packaging on your new bedsheets, I mean, like, holding it tightly gripped in the fist, with the pointy end pointing at the person at your door- a person who is one of those scary pregnant ladies that jump you and kick your ass and waddle in your house and steal your new bedsheets) .....

(inhale)

Would you think it odd?


Trying not to, but thinking it odd anyway,
ephelba

Rant against LJ

Can I share how much I hate Live Journal? I can never follow the comments: pages of comments sliding back and forth across the screen and referring to people and sites I've never heard of... I can never find my way around a person's, umm, blog? page? entity? there- like how the fuck do you email somebody? Jesus! and when I try to comment it ends up in the wrong spot. And it seems like a real pain in the ass to change your format.
Why the hell do people blog there?
I wouldn't read a thing on it if it weren't for rss feeds. I can't tell an entry from a comment half the time, and I certainly can't keep straight what the hell page the entry is going to show up on.

Grrrr.

Ok. I feel better now. It's just I clicked through my feed to an actual journal and I was going to comment but I had a hissy instead so I came back home where blog formats make sense and all the comments fall nicely down the page.

loving blogger,
ephelba

Of course I did.

Googling is next to godliness- of course I googled. I'm proud I waited as long as I did. I only read two sites. That was enough. I can totally see why he picked this syndrome as best candidate, because if you take all of Peanuts quirks and write them down in a list, you can find all of them on the list of symptoms/conditions for this syndrome. Thankfully, all of the symptoms and conditions on the list cannot be found in Peanut. Some of them are harsh.

What is most upsetting to Simon and I is that (almost all?) kiddos with this syndrome have learning disabilities. Lower IQs than average. (Arguably) higher rates of mental health issues. Of course, the severity of the problems varies with the kid, but, of course, we don't care, we don't want Peanut to have problems at all.

So now we wait. Two weeks. At least. Results should be in around then, and then if the news is bad I do the full, all out googling and we make The Trek again.
If it's good we thank our lucky stars. A lot.

Crossing my fingers,
ephelba

Micro Deletions

I had been taking Peanut to a Dr whose entire approach to medicine could be summed up by the words "Wait and See". I can't really argue with that, but I find myself doing all the worrying that I don't see the Dr doing, and I turn into a nutty mom who worries about every little sneeze and twitch. We switched to a Dr who takes Everything Very Seriously, which means I don't have to, which means I become the kind of mom who forgets to take her kiddo in for a weigh check(she feels HEAVY to me), blows off missed milestones (She'll get around to it soon), and almost cancels the geneticist appointment that was scheduled, oh, four months ago.

It is such a pain in the ass to go to the city where the geneticist is. It's a two hour drive. Not a big deal for you and I, but add a baby to the mix and suddenly you're figuring out how to work the baby's daily bottles, naps, messy meals and poos in to a day trip on one of the hottest days of the year. Just planning and packing for the day could wear you out. Just to add to the fun, though, take this trip in a compact car with the whole family and no air conditioning. If you've an imagination (or children of your own) you can see why I was second guessing the need to do this.

I was convinced the Dr would look at Peanut and laugh. "Why have you brought this child here? Everything can be explained by low birthweight! Silly anxious mother! Ha! You have wasted a day of your life for nothing! Enjoy your trip back home!"

Instead we had a two hour appointment (albeit, with a fair amount of waiting involved) where they asked about Simon and my medical histories, peeked in her mouth, measured her birthmarks and said there are several syndromes we need to rule out.

Frankly I was shocked as shit.

He had a personal favorite. We took her down and had blood drawn to test for that. The other one (or more?) we'll rule out as need be. I have not Googled a thing yet, because I don't think it wise to work myself up over something she may not have. Also, a new label isn't going to change who she is.

Of course, not Googling is hard. Maybe I'll Google just a little.

No, I'd work myself up over nothing.

But it would be nice to know what we're talking about.

The Dr said not to Google. He said you only hear the bad stories.

How bad are they?


Fighting the urge,
ephelba